Race Crew

Paddler - Bob Bradford - Email Bob!
Paddler - Clark Eid (845) 634 6406 or Email Clark!
Technical Advisor - Verlen Kruger http://www.krugercanoes.com
Road Crew Captain - Stan Hanson (618) 632-7349 or email Stan!

Additional road crew members donated significant time and energy to this event, the above folks simply serve as a main contact point.

Leukodystrophy Contacts

United Leukodystrophy Foundation (ULF)
Contact Alyson
United Leukodystrophy Foundation
2304 Highland Drive
Sycamore, Illinois USA 60178
Phone: (800) 728-5483
FAX: (815) 895-2432

Website

Please note, this website is provided free of charge by Mary Potter and Clark Eid in honor of all those who suffer from Rett Syndrome or a Leukodystrophy.

Many individuals donated work, pictures, images and video for use on this website, and we thank them all!

If you have questions or comments about this website, contact Mary Potter

Rett Syndrome Contacts

Rett Syndrome Research Foundation (RSRF)
Contact Mary Joyce Griffin
Rett Syndrome Research Foundation
4600 Devitt Drive
Cincinnati, OH 45246
Phone (513) 874-3020.